About Us

The New York City Clinical Data Research Network (NYC-CDRN) has been established to improve and streamline research in an effort to advance patient-centered research. Together, we can find answers that will save lives.

We use a large volume of robust, high-quality patient data and support services from a unique collaboration of more than 20 partners. These organizations include Columbia University, Montefiore Medical Center, Mount Sinai Health System, New York University Langone Medical Center, NewYork-Presbyterian, Weill Cornell Medical College, and the Clinical Directors Network. The NYC-CDRN is funded by the Patient-Centered Outcomes Research Institute (PCORI).

The goal of the NYC-CDRN is to enable patients and medical providers to make better-informed clinical decisions, putting patients first.

The NYC-CDRN collects comprehensive medical histories for what will be as many as 6 million patients. This robust data enables groundbreaking medical research in a way that ensures the privacy and security of our patients.

By participating in our research, patients give us the potential to provide the most thorough and detailed snapshot of patient care in New York City — information critical to determining how effective and economical existing health care treatments and delivery models are and how they compare against each other.

Ultimately, the NYC-CDRN network will be a leading component of PCORnet — a national research data network that will enable researchers to perform data queries and analysis across various regions and patient populations.

The NYC-CDRN provides…

We have assembled complete, comprehensive, longitudinal data sets on several million patients into a single repository.

Our database includes clinical data compiled from our participating health systems’ electronic medical records. Over time it will be expanded to include claims, biospecimen and genomic data, patient reported outcomes, and patient generated data.

Patients’ data are linked across our participating health systems, providing a broad and unique view into care patterns.

Investigators can use the data to make prep-to-research queries, conduct observational and comparative effectiveness studies, and identify subjects to participate in interventional trials.

We follow rigorous policies and procedures for the secure storage and transfer of network data to preserve patient privacy.
We provide investigators with expert guidance for engaging patients, clinicians, caregivers and advocates. Our Patient and Clinician Advisory Board advises the NYC-CDRN on its goals and policies, and reviews research projects.
We offer a range of opportunities for investigators to disseminate the results of their research to medical and patient communities.

We use a central IRB at the Biomedical Research Alliance of New York (BRANY) to ensure efficient IRB review, facilitate contracting for multi-center studies using standardized agreements, and work with sites to adopt standard processes for patient consent.

We offer a means of engaging other investigators within our participating health systems to collaborate on multi-site research projects. We facilitate subject recruitment by connecting investigators with participating sites to recruit patients to participate in trials.

 

Interested in receiving emails from us?