Utilization of an ICD-Coded Big Database Research Summary
Investigator: Christina Pressl, MD, Rockefeller
With the support of the Patient-Centered Outcomes Research Institute (PCORI) and its INSIGHT Clinical Research Network (INSIGHT CRN), researchers and clinical investigators like myself are opening new possibilities to study this rare and little-known condition. By harnessing rich data sets, we are able to shed light on aspects of this condition that may have previously been impossible to study.
Functioning face perception is a skill we use in our everyday life, so it is not surprising that face blindness can be socially devastating. And yet, there is still so much we do not know about the condition. From what has been previously studied, we do know that it can be present either in a developmental or an acquired form through incidents that compromise brain function, such as trauma or stroke. However, the information gaps around face blindness remain substantial. We do not know what genes may be involved and are not certain if the condition can be inherited. Researchers are still not able to pinpoint the exact number of individuals affected by either developmental or acquired face blindness, although it is estimated that up to two percent of the general population suffer, to some degree, from face blindness.
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